The boy was feeling fine by the time he went to
bed last night, but he still had a mini-melt down to end the evening. It may
have been the day of being home, but feeling not completely himself all day and
then a burst of energy and then poof! A firecracker-flash over nothing really,
but something that sets him a bit on edge when well and a quick bright burn and
flash to anger when not. I think because I told him I wasn't going to be home
too on Saturday and he wasn't ready to let that be a change in his life.
I spent the day today with thespians in Olympia
listening and listening to students, writing and writing about what I saw
students perform, and talking and talking to other theatre peeps I see so
seldom as we are scattered across the city doing various projects always. It
was restful, draining, and encouraging at the same time.
When I got home there was a surprise in a young
man that was our boy's first ABA tutor was visiting us unexpected as he was
just up in Edmonds for the day. As he spoke about where we began working with
my son after his autism diagnosis I was flooded with the feelings of those very
muddy waters of where it all officially began. I also saw a much more confident
and amazing young man standing before me that is now working as a special
education preschool teacher---inspired he says by our son and the work he did
with him when he was 3. I'm so proud of my son and his progress in life and
this young man's journey---his calling and taking up the challenge and that it
suits him well. He loves it.
He left after a nice visit and my dear husband
went to lie down for a nap. So my son and I settled into a routine. The radio
blaring our local NPR station and us taking turns on a game on the
computer---at some point the world just stopped for a moment and gave me a
pocket of quiet to settle into as my little boy climbed into my lap and said,
"Mama, you went to Olympia today."
ME: Yes, I did. Did you miss me?
BOY: Hmmmm...(his thinking sound just like it is
written it sounds) I think I did miss you.
ME: You think you did? Don't you know if you
missed me?
He took his hands and cupped them on either side
of my face and looked right at me for just a moment and said, "I did miss
you from the moment I got up today. I missed my Mama." Then he turned away
from me and settled his body into the pocket on my lap and leaned in for a kiss.
You see he knows if he leans in like that he'll receive one. I gave him
a kiss and he got up and excitedly ran around the room in response. This was more
of a victory romp that he does hundreds of times a day, but this is his extra
special "something extra special has happened” romp that celebrates with
his body dancing as he does this sound that comes from a happy hum inside him.
He does this in a happy bouncy run making a circuit of our living room and
kitchen and back to where I am on the couch.
And then the room rushed back in with all the
noise and complications of artistic lives and autism and each other. A few
years ago I never thought I could have this much conversation with him and now
yes, he is articulate even in some ways and in some moments, but for finding
more footing in his understanding and our understanding him, sure we've got a
ways to go.
My going somewhere even for the day is getting
harder in some ways and I miss those more flexible moments where it didn't
matter if I was there or not so I just took off to "do my thing", but
truly I wouldn't trade that false freedom for this moment of connection---a connection
that seems to get stronger. A moment that feels more defined and the waters are
muddy, but it has all settled to the bottom for this very moment and if I don’t
move or breath I can see where I’m standing. I see my feet sinking down in this
squishy, gooey mud where I feel very stuck. So stuck, will I get out? No, I can
wiggle my toes and the water is still clear. I can swim here. I know it.
Our lives are a bunch of unimagined moments. I
never thought I'd be where I am or what I'd be doing except in that little girl
that loved words somehow got here and somehow plays with words for a living. My
son has always loved words even when he spoke very few of them he still loved
them more than anything. He had a set of refrigerator magnets that were the
alphabet and he'd spend hours arranging them into words. We had sets of them
everywhere in the house, the car, and on any metal surface as it was the way we
communicated and he played. We played or tried to by playing with words. He was
barely two and a half and that is all he wanted to do. So of course he talks
and wants to communicate. Why couldn't I see this coming?
This is a pocket I will put things into and keep.
I will take them out in the quiet moments and reflect on what they are and then
celebrate that we have them, they have value, and I never know what wonderful
thing will plop down into my pocket again someday. On a day, when I've given
out and perhaps even given in or felt pushed away---I'll see the journey
dancing in my living room. I know the joy of a kiss after a day away. And I
will listen, write, and talk playing with the words we have---letting go of
imagining what could be or can be or should be or might be. This is my extra
special moment today.
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